Sunday, April 23, 2017

Therapies work and miracles happen!

I have been a little quiet on the blog front recently and that is mainly because I have been hard at work on pieces for a variety of sites. I have also been just enjoying life. Spring break provided us with a week of much needed down time. During this last week the kids have been able to rest and recharge. Sophie system is finally back regulated and we are able to enjoy our lovable, clever and musical child once again. I couldn't be happier. February and March were full of turmoil and we have had to make some agonizing decisions regarding her OT services and dietary needs. Now that we have made our changes, I feel like we are ready to move forward. Apparently, Sophie has been feeling the same way.
Sophie has a moderate gross motor delay. It is exasperated by her sensory disorder. This amazing combination results in a child with a lot of energy who has no idea where her feet when she is excited and an extreme fear of any unknown motor based activity. No swings, no high slides, no bridges, tunnels, carousels, rides and the list could go on and on. Enter PT and OT. (Especially PT). Now my child jumps off steps and will get on a swing (although she will only be on one where her feet touch the ground).  I have begun to stop holding my breath when Sophie moves and am entertaining the idea that she might be able to play on the playground with her friends one day without adult support.

Then, this week, we went to the trampoline park and she did this:


video

Even Isaac says in the video "Deeter, jump!" I may have had to fight back tears. I am sure everyone around me at Sky Zone must have thought I was nuts on Friday but this is a miracle. I was afraid we might never get here. If we go again, she may decide not to jump but now I know she has it in her. Therapies work. She even scraped her knee while jumping, let me put a band-aid on (that Sky Zone provided!) and then went back to having fun. She promptly followed up reaching this milestone with letting me push her on a swing for the first time in her life! 

Did we have set backs this week? Absolutely. On the first day of break she fell while running and obliterated her knee. That was followed by a day of limping, begging to be carried and a day of sobbing when I made her take her band-aid off. But we are better prepared to handle these issues and she has an easier time recovering now. I hope with the change of OT and additional nutritional support our family will gather even more tools to help Sophie on her journey. With hard work and dogged determination, miracles do happen. So if you are a family slogging through your sensory journey, please know that days like this are ahead. Just make sure you have your video camera ready. 

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